Home > Case Studies > Hydrocephalus Caused My Headaches: A Case Study

Hydrocephalus Caused My Headaches: A Case Study

By: Kathryn Senior PhD - Updated: 22 Jun 2010 | comments*Discuss
 
Hydrocephalus Headaches Viral Meningitis

It has been a long year for Mark. In and out of hospital, he is now starting to exercise again and is looking forward to a much better summer. “Late last May, I was rushed to hospital after collapsing at the school where I teach and diagnosed with viral meningitis. That’s not quite as dangerous as meningitis caused by a bacterial infection, but I was very poorly and was kept in for 10 days. After that, I started to recover slowly at home, knowing it would take time,” explains Mark.

With the support of his girlfriend Clara, Mark tried to get back on his feet. As a PE teacher, he was used to being very active, so having to stay at home and rest didn’t come very easily. “When I was first out of hospital, I couldn’t do more than just lie around, but after a couple of months I started to get frustrated that I wasn’t getting back to normal. I knew that I needed to take things carefully but the worst problem was that I started having migraines,” says Mark.

Constant Migraine Headaches

Three months after his first discharge from hospital, Mark found himself back there having tests because his migraines were getting worse. “I was getting a headache nearly every day – and I had never had them before. Really bad ones, with nausea and sickness and I couldn’t bear light. I was also very sleepy and difficult to wake at times, and I felt really groggy. Not myself at all. My GP thought that I might be developing another infection, so I went in for a two-night stay to have some tests,” he says.

Various different tests were done, including a spinal tap, but there was no sign of any infection. Mark suffered two headaches during his stay in hospital, and his neurologist did several CT brain scans, both when he had a headache and once when he didn’t. “That wasn’t planned, it was just an accident of timing but it did show him something – he suspected that I had excess pressure in my brain as a result of excess fluid,” says Mark.

Hydrocephalus Diagnosed

After consulting with a colleague, looking at Mark’s scan results again and examining him, the two neurologists explained to Mark that they thought he had hydrocephalus – fluid on the brain. “I was shocked – I had heard of hydrocephalus but I thought it was something that only happened in babies born with spina bifida. I had no idea it could develop in an adult,” Mark remembers.

The doctors explained that, while it was true that hydrocephalus was more common as part of a congenital defect like spina bifida, it could develop when the normal drainage mechanism that balances the cerebrospinal fluid in the brain was disturbed by an infection. They also told him that people over 60 can also develop the same problem due to age-related changes. This also causes headaches, but it can also lead to problems with balance and memory. The symptoms mimic dementia, and it is often misdiagnosed.

Surgery to Relieve the Hydrocephalus

Just as babies born with hydrocephalus that are given a shunt system to drain away the excess fluid from the brain into their abdomen, adults with hydrocephalus need to have their shunt in place for life. “I was worried about that at first – the thought of having to have the surgery was scary enough, but the fact that the shunt would need to stay in my body forever was really weird,” recalls Mark.

The operation was scheduled for just after Christmas and went well. “I was in hospital again for 10 days, but was so relieved that the headaches just stopped. Once the pressure in my brain was reduced to normal levels again, the cause of the headaches had been removed and I have had only the odd one since. I then started to feel much more myself again and coming home from hospital after the shunt had been put in place really marked the start of my proper recovery,” he says.

Mark will now need life-long follow up care to make sure his shunt stays in place and works well for the rest of his life but there is no reason why he can’t now get back to full health and fitness. “After nearly a year out, I return to work in September – and I am looking forward to getting on with my life at last,” he grins.

You might also like...
Share Your Story, Join the Discussion or Seek Advice..
Why not be the first to leave a comment for discussion, ask for advice or share your story...

If you'd like to ask a question one of our experts (workload permitting) or a helpful reader hopefully can help you... We also love comments and interesting stories

Title:
(never shown)
Firstname:
(never shown)
Surname:
(never shown)
Email:
(never shown)
Nickname:
(shown)
Comment:
Validate:
Enter word:
Topics
Latest Comments
  • OllO
    Re: Headaches After Head Injuries
    @Kk - I would. Obviously, it's going to be an impact, but if it doesn't subside it's always good to get stuff checked out…
    19 July 2018
  • Mr.brown
    Re: Headaches Caused By Infection
    Question I recently had taken sti antibiotics for one week after that's about a week from the last day I took the pills I start…
    11 July 2018
  • Hil
    Re: Migraines and Menopause
    @CarryWarry - Oh wow - thanks for this. I have had a continual headache since menopause, having never suffered previously in my life.
    2 July 2018
  • MiM
    Re: Headaches After Head Injuries
    @Queen - go back. If you have taken the time out to ask for help, then you need to see someone as obviously your neck is not right.
    2 July 2018
  • CarryWarry
    Re: Migraines and Menopause
    I am hoping to be at the end of a horrific 2.5 year period of hell with headaches which came out of the blue. My story started with me…
    2 July 2018
  • Queen
    Re: Headaches After Head Injuries
    I hit my head about 3 months ago. It hurt but I'm someone who has a high pain threshold and tend to "walk things off". However,…
    2 July 2018
  • Shazza
    Re: Headaches After Head Injuries
    I fell few weeks backs banging my head slightly. But last few days my head as been a bit fuzzy with headaches any need for…
    19 June 2018
  • Migraines/tension/pr
    Re: Numbness in Head With Pain and Dizziness: What Can it Be?
    I feel numbness on both sides and top of my head feels like my brain is swallon like a lot…
    18 June 2018
  • Lou
    Re: Headaches Caused By Infection
    I'm having lightheaded and can't stand up been in hospital they done all the test MRI ct scan all clear had a really bad attract…
    11 June 2018
  • N0NE
    Re: Headache With Pins and Needles: Is This Serious?
    Started feeling nausea yesterday,just now I felt sick,stood up and felt dizzy felt like I was going pass…
    5 June 2018